Clone Wars launched this weekend

November 18, 2011 by · Leave a Comment 

A new charity supporting people with a rare bone marrow disease, has secured agreement from Star Wars creators Lucas Film to use their Stormtroooper logo to highlight their ‘Clone Wars.’

To be launched formally on Saturday 19 November 2011, at Newton Mearns Baptist Church by Patron Humza Yousaf, MSP, the charity is called PNH. This stands for Paroxysmal Nocturnal Hemoglobinuria (PNH). People with this potentially life-threatening disease can suffer organ failure. Said Humza: ‘Those with a rare disease, such as PNH, not only suffer from that but also have to deal with feelings of isolation. They will very rarely come across others with the same condition.’

In PNH patients the bone marrow causes blood cells to be produced incorrectly. The percentage of abnormal PNH cells in the blood is called the “clone size” hence ‘Clone Wars.’

Founder and Chairperson of PNH Scotland, Lesley Loeliger also commented: ‘My aim in setting up the PNH Scotland charity is to raise awareness of this ultra-rare and debilitating bone marrow disease. As a PNH sufferer myself, I know how important it is to have a point of contact and up-to-date information and that is exactly what PNH Scotland intends to provide.’

Added Humza: ‘ I am honoured to be made Patron. Not only will the group raise awareness of the condition but it will give much needed support to those suffering, many of whom have no-one to turn to for help and advice.’  Lesley is a former neighbour of Humza’s. He said: ‘ I saw her when she was first diagnosed and have seen her right the way through her journey from then.’